Raygen has been through 2 open heart surgeries, a tracheotomy, a dencanulation, 2 heart caths, stent placed, numerous iv's, pic lines, blood draws, x rays, echo's, ekg's, g tube placement and so much more. She is almost 1 and wow what a year she has lived. I am so grateful for her strength and determination to live. She has opened our eyes to a world we would never have saw. She has encouraged us to live in the moment and enjoy every single second we have with her and her big sister. We do not know how many tomorrow's we have with anyone but it's scariest when you know you are not guaranteed any especially with a special heart. Raygen has one more open heart surgery to go and till then we are going to live, laugh, enjoy, and cherish every single second of every single day with our miracle. God is good.
Follow the link below to learn about more families and share in their stories with CHD.