Friday, February 10, 2017

Fear is Your Only Enemy


I came across these 3 pictures the other day of holding Raygen during the first week of her life.  This is the only time I held my daughter without scars.  She was perfect in every single way.  If she wasn't in Seattle NICU or attached to an IV pole and so many monitors and wires you'd think she was perfectly healthy.  From the outside in she was perfect, but from the inside out she was in serious danger. 

Joshua 1:9Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go. (NIV)

I can not put into word exactly how I felt during this time period of Raygen's life because I was on an emotional roller coaster.  I had just given birth to a daughter that I was terrified I would never bring home.  Fear gripped my insides like a press.  Squeezing me harder each and every hour.  I was so extremely scared to love her and even more not too.  Too be honest I loved this little girl since the moment I knew I was pregnant, but holding her, knowing within days she was going to have major open heart surgery and may not survive made me ill.  I hardly slept, ate, or left her side.  I tried to spend every single second with her.  At the same time I was so scared I made myself sick with anxiety and felt horrible.  I cried constantly and I look back on this time as one that I wish I could fast forward through.  The emotions that it brings up are hard to deal with even to this day. 

Deuteronomy 3:22Do not be afraid of them; the LORD your God himself will fight for you. (NIV)

Being in the hospital made it hard to truly bond with Raygen because she had a full time nurse who cared for her, plus it was best if she wasn't held that often to protect all her iv's and equipment she was attached to not to be disturbed.  But I held her as much as they would let me.  We slept in a little sleeper room upstairs and carried a pager around constantly.  I will never think of pagers the same way again.  The few times ours went off we would sprint from wherever we were to our daughter praying she was okay.  We would call down to the nurses at all hours of the night to get updates or if anything changed they called us.  We never wanted to be away from Raygen more then a few hours to rest so Randy and I were always exhausted. 

Philippians 4:13I can do all this through him who gives me strength. (NIV)

Fear was and is my constant enemy.  Fear tries to stop me from enjoying life.  Fear likes to control me.  Fear tries to take the joy out of every moment. Fear will always be my enemy.  Why?  Because I'm a heart mom.  I try my hardest to live day to day and not think about all the "what ifs," but I'm a worrier and she's my daughter. 

 Isaiah 41:10So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. (NIV)
We were told during our 20 week ultrasound that there was a possibility something was wrong with Raygen's heart.  I look back now and can tell you it was one of the best and worst days of my life.  The joy of knowing I was going to have another little girl and the grief that something was wrong.  It was a long two weeks later that we were given the devastating news that Raygen had HLHS, or half a heart. 
It's probably hard to believe this girl is almost 6 years old and has undergone 3 open heart surgeries.  That is 3 times her heart has been stopped, placed on bypass, and restarted again. 

Deuteronomy 31:8The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.

Deuteronomy 3:22Do not be afraid of them; the LORD your God himself will fight for you.

I have included Bible verses because they are what I turn to during difficult times.  There are no words to say to a parent going through a serious illness with their child.  God always knows what I need to hear.  What I need to be reminded of.  I hope you find comfort in them as I did. 
Okay so when I'm stressed (lets say that's about every day) I crave chocolate like there is no tomorrow.  So I was so excited that IdealLean turned my favorite smoothie into a protein barMint chocolate protein bar is going to be on my "must" list.  This will be an awesome way to satisfy that chocolate craving and not totally ruin my diet for the day.   Right now the mint chocolate protein bars are on sale!!  There only $14.99 a box.  That's a savings of $15.00.  If your like me and need a little treat on stressful days, or everyday, I recommend these.

xoxo

Erin&Raygen

Monday, February 6, 2017

Heart Month or Heart Life


When I think of "Heart Month" I don't get too excited because honestly it's not just a month for me.  Every month of the year for the rest of my life will be "Heart Month."  This isn't denying that devoting the month of "Love" to bring CHD awareness is bad thing.  It isn't.  Its just that I used to go all out for heart month.  I'd post every day, run ads in our local newspaper, sale raffle tickets for baskets that we'd put together and then this year I stopped.  Not because I don't want to bring awareness because I do, but because I felt like the only thing I was doing was putting more stress and pressure on myself.  Like the world of HLHS depended on me posting and talking about CHD everyday.  I felt like I was letting Raygen down if I wasn't trying to get her story out there.  I felt as a heart mom I wasn't doing my part if I didn't post every day, but in truth, the only person I was letting down was Raygen.  I would get so into posting about Raygen that I would forget to enjoy her. 

Heart Month is important, but really I don't see too many people talking about how our hearts really work.   You always hear things like: "You have a big heart," "His heart is two sizes too small," "You make my heart happy," "Your my heart," etc.  This is probably how most of us think about our hearts.  It makes me laugh now because before Raygen that was my train of thought as well.  Now when I think of the heart it has nothing to do with feeling.  It has to do with function.  Not the make believe thought that our heart is only there to feel "love" or be "broken," but a organ in our body necessary for life.  If only our heart was just responsible for feelings.  Our heart, my heart, your heart is responsible for pumping blood throughout the body via the circulatory system supplying oxygen and nutrients to the tissue and removing carbon dioxide.  Not what you want to see on a Valentine Card is it?  Now most of (unless your the 1 in 100) have a normal heart that does this with 4 chambers.  Raygen on the other hand does not have 4 chambers she has two.  Raygen is missing her entire left side of her heart.  The left side of the heart is responsible for pumping oxygenated blood into the aorta, the large artery that carries blood to the body.  Raygen's two chamber heart will now be responsible for a four chamber job.  Sounds frightening doesn't it?  Well it is.  The right side of her heart will now be responsible for  what is usually the job of the left side by pumping the oxygenated blood to they body.  Her deoxygenated blood will flow from the veins to the lungs without passing through the heart.  I know it's complicated and probably too much information but it's like asking two men to guard 500 prisoners.  It's a big task your asking and failure isn't an option.

I know that the only way awareness for CHD or any medical condition that needs support is spread awareness everyday.  Not just the doctor appointment or the statics, but the everyday life because that is the truth.  The truth is being Raygen's mom is the most rewarding and scary experiences in my life.  I can fix most anything that needs to be fixed.  If I can't fix it I know who can, but when it comes to your daughter's heart that is completely up to God.  My hope is spread awareness everyday.  Celebrate Raygen and her heart everyday.  Not because I feel the pressure or feel like the world will forget all about HLHS if I don't talk about it, but because I feel that Raygen is a inspiring little girl.

XOXO
Erin & Raygen



Saturday, February 4, 2017

Dentist Check-Up and Cardio

So Raygen and I had a very busy week.  It started with a trip to Seattle Children's for a dental check up.  The Dentist at this point is no big deal because it is only a look and discuss.  Since Raygen has never really eaten by mouth she really doesn't have dental issues.  She still has a lot of oral aversion so a cleaning is just out of the question.  From what the dentist was able to see Raygen has no cavities!  The dentist also told me Raygen is missing two of her eye teeth (I think that is what they are called.)  Since the baby teeth are not there she said it is most likely there will be no permanent teeth either.  However, before we left Raygen was placed on the waiting list to be sedated to have her teethe cleaned and  have sealant placed on her permanent molars.  I'm not looking forward to this, but I do think it is important to keep Raygen's teeth healthy as possible.  At some point I pray it will be possible to have her teeth at least cleaned without be sedated.

Raygen and I celebrated after the dentist by going to the Disney Store.  Let's just say I would have spent the entire day with her there, happily, watching her run around and explore.  She was in "awe."  We left with a Minnie, Daisy, Belle, and Sleeping Beauty.  I would have bought the whole store for her if I could :0) 
Thursday we had a big day at the cardiologist.  Its been 6 months since her last check up so I was a little nervous.  Raygen had to have blood work, x-ray, echo and an EKG.  We were lucky the blood draw was done with one poke and the x-ray was quick.  Raygen did awesome during her echo only crying right at the beginning, but then remained calm and they were able to get a really pictures.  Usually she screams the entire time during the EKG (she hates the stickers) but this time she was such a big girl and didn't cry at all.  It was the best EKG she has ever had if you don't count when she is sedated :0)
SHE IS DOING AMAZING!!!!! ....
words straight from Dr. Park's mouth.  What a relief.  I am so very grateful that Raygen has remained so healthy and strong.  We will go back in 6 months for another check up and then Dr. Park mentioned going to once a year.  I don't believe I am ready to have her heart checked only once a year, but it does show how well Raygen's heart is doing if her cardiologist brings it up.
Thank you to everyone who loves and prays for Raygen.  It is truly by the grace of God and all your prayers that Raygen is the happy, beautiful, amazing little toddler she is.

XOXO

Erin & Raygen


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Monday, January 30, 2017

Flashbacks..

I love the Time Hop app on my phone.  I love always being reminded on how far my daughter has come.  This little cutie is her future husband, Aiden.  Raygen and Aiden were born about two weeks apart.  They both are HLHS kids.  We have spent a lot time together with Aiden and his family because all their surgeries have been pretty close together.  Aiden is currently on the transplant list waiting for his new heart. 
Before Raygen was running and dancing around she started with her walker.  I can't believe how tiny she looks.  Raygen skipped crawling all together and went straight to walking.  Since Raygen had a stroke and the right side of her body is a little weaker crawling does not come easy for her.  She does crawl a little now, but this girl is a runner.   
These moments were some of the happiest of my life.  Watching my daughter conquer her battles is something that a Mommy can never get enough of.

She goes from a walker to this weekend her first ride on Tucker.  Needless to say I was not there because I'm not sure this would have happened, lol!  Zoie and Dad thought they'd try it out though.  They told me she liked it, but I'm not that sure.  She doesn't look too impressed to me. 
Her Great Grandma Bev went for the first time to Disney Land and brought Raygen back the cutest Minnie Ears.  She loves them.  She was checking out her reflection in the window at the office.  I think this girl is ready for Disney Land :0) 
I wish I knew what this girl was thinking. 

The Ipad is going good.  She is using it well, but still needs to be prompted, but uses without fuss.  I am excited to share some videos this week of her using it because we discovered she can spell mom, dad, and her name without help!!!  Raygen just leaves me speechless sometimes with how much she knows.
I have to share this AWESOME deal with you.  You can buy 20 servings worth of IdealLean Protein for $29.99 usually its $49.99,  I love all the flavors they are offering in this pack.  I just tried the chocolate coconut tonight and it was really good.  The chocolate brownie and French vanilla go with everything and who doesn't love strawberries and cream?  I love buying the variety pack because when I'm in a hurry I just throw one of these in my purse and make sure I have my shaker cup and I'm good to go.  If your curious about trying IdealLean and not sure what flavor you would like I think this would be the way to go.  Plus there is a lot more then smoothies that you can make with protein powder.  Check out the 101 ways to use IdealLean protein :0)

XOXO

Erin


Wednesday, January 25, 2017

That Which Doesn't Break You..

Nine years ago today we were in Las Vegas saying "I do."  I can't believe it's been 9 years?  It doesn't feel like it's been that long, but then again it feels like it's been forever.  Forever in a good way.  Zoie was only 4 years old when Randy and I got married.  She looks so much like her Dad and Raygen looks so much like her. 
Nine years ago my Dad gave me away.  I look at this picture and I don't recognize myself.  I was so young and so naive.  Don't we all wish we could go back and tell our younger self all the things we have learned along the way?  I so wish I could.  I wish I could tell myself that things were going to be okay and everything would work itself out.  That I am strong enough to handle it.  The girl in this picture is not me.  I don't even relate to her anymore.  All her wants and dreams are completely different then mine today.  Is it strange that in 9 years I feel like a completely different person?
I'm still a mother, a sister, a daughter, and a wife, but not that wife.  Because in 9 years I have struggled with infertility, had 2 miscarriages, had a baby with half a heart and struggled with self-doubt and body issues.  This bride in this picture has no idea what the future holds for her.  No idea that she is strong enough to handle it. 
Today I am a different person.  I'm a stronger person.  I understand that life isn't easy and nothing comes without hard work and the grace of God.  I have seen my daughter go through things that no mother should have to witness.  I have been humbled by God and by the love of family and friends.  I have learned that I really don't care how nice my house is or what car I drive because I'd rather spend my money taking my kids on vacation.  My favorite place to be is anywhere surrounded by my family.
I have a true, deep love and respect for my husband.  You so often hear "That which doesn't break you, makes you stronger."  That is what Raygen has done for our family.  She has made us stronger.  There is a lot of stress in any marriage, but when you have a child with a life threatening heart defect it can take a toll.  There isn't a moment where it's not on our minds and heavy on our hearts.  I think we both try to live life to the fullest and make sure our girls needs are put before our own.  We have walked 9 years together and we will continue to walk whatever path God lays before us.

I've said many times that fitness has become my outlet to deal with stress and it has really helped me.  If I'm training for a race or just working out to stay in shape I love using products that help me make the most of my workouts because I don't have a lot of time to waste.  I just received the newest IdealFit protein and BCAA flavor and I have to say I'm hooked. 
Every morning this week I have made a Mint Chocolate Smoothie.  I use one cup almond milk, one tablespoon cocoa, and some chocolate NuNaturals syrup and it's been delicious.
Who doesn't love Strawberry Kiwi?  They go together like PB&J.  This has really helped get me through some tough cardio workouts this week.  I recommend this flavor a lot.

XOXO

Erin









Saturday, January 21, 2017

Learning the IPad and Macro's

This week has been amazing.  It's been so much fun.  Raygen's new IPad has been a learning curve for us this week, but I see so much potential.  This week we have really stuck to the basics.  We let her cruise all the buttons and hit them over and over and over so she can memorize where everything is.  There is a lot of prompting her to use it for example: When she wants her IPad: She has to tell me...
This is what it looks like when she is asking for her IPad.

When Raygen wants something to drink she has to tell me:
I want fruit punch.

I can already see her "knowing" how to use it, but sometimes I think she just doesn't want to take the time to do so.  This is a huge change for her.  We have all adapted to how Raygen communicates with us now.  She knows how to sign a little and she is very good at taking your hand and pulling you to where and what she wants.  These are all great, but I think in the long run Raygen really will be better off using her new IPad.  

It is hard for me to make her use it because I know what she wants.  Sometimes its quicker and easier for me just to make her happy, but I know that is not helping her.  So this weekend my focus is to take a lot of pictures and add more buttons and to organize them in a way I feel would best suite Raygen.  I am amazed that she has this tool that will give her a voice and I know that in time she will be chatting away.  I can already say she has asked me several times for drinks without me prompting her to use the IPad.  So I'm pretty excited.  I can't wait to record more videos and just continue to share her learning this awesome new skill.   


I had to share: I received my IdealFit tote and pre-workout Pineapple Mango. I love!!

Along with learning Raygen's new IPad this week I have been supper excited to read Trainer Lindsey's new Ultimate Guide to Macro's.  I have recently started tracking my Macro's and I wish someone would have taught me this years ago.  The one thing I realized when I started to track was that I was not eating enough to fuel my body.  I was thin, tired, and crabby. 
Now that I know how to fuel my body to reach my goals it has opened a new world for me.  I used to fear food.  I would exercise to compensate for over eating, I would live on nothing but smoothies and salads and I was miserable.  I really needed to change.  I wasn't being a good mom, a good wife and I wasn't being good to myself.  Even though I exercised and I finally fit in size 4 jeans and the number on the scale was the lowest it had ever been in my life, I wasn't happy.  So if your in a rut I highly recommend this book.  I wish I had this information years ago.  I don't have to starve or deprive myself.  I don't have to work out to the point of exhaustion or  miss out on everything because I finally know how to use real food to reach my goals.  Since counting macro's I have seen changes in my body that I had been working years to see in only a few months.  So if your interested check out this book.  It's a keeper.


XOXO

Erin&Raygen



Wednesday, January 18, 2017

Start the day off right

Raygen's daily schedule is pretty strict because if I get too far behind on her feeds then the longer I have to stay up at night to make sure she reaches her hydration and calorie needs.  There is also the risk if I feed her while she is sleeping that she will wake up and then be up for hours.  Raygen will go weeks sleeping well and then fall into a cycle where she wants to sleep during the day and party all night.  I really don't enjoy those cycles because I am way too old to party all night.  I'm ready for bed at 8pm, but usually get there somewhere around 10.  
I start Raygen's day off with Miralax.  This is a very important start to her day.  With her Miralax she gets 180ml of water and her allergy medicine.  I give this to her around 6:30am that way I can feed her a bolus (food) around 10:30am.  I can usually give Raygen her morning meds without her waking up.  I try to let her sleep as long as I can before we need to load up to get Zoie to school and make it to the office so were not late for ABA. 
180ML water with Miralax, 5ML Allergy Med, 1.5ml Lasix, and 5ml Lasix
I remember when I was pregnant with Raygen the doctors always told me she wouldn't have the same amount as energy as Zoie had when she was younger.  That Raygen's heart would restrict her activity level and that she would tire very easily.  So far I have to disagree with them.  Although Raygen has been known in times of stress to make herself go to sleep she certainly has no lack of energy.  I love watching her run around at ballet. 
Our best friend Gabby brought an umbrella to dance on Tuesday and was nice enough to let Raygen play with it on the way home.  They even let us borrow it for a couple days because she became so attached to it.  So here is Raygen watching her movie in the car on the way home staying dry with her umbrella, lol!!
She is so observant.  She watches everyone.  I can't wait to know what is going on in the little mind of hers.
She knows how to take great selfies already!!
So I know Raygen starts her day with Miralax, but I start mine with IdealLean pre-workout.  I have 3 flavors right now!!!  I love them.  They give me that little boost of energy at 4am that I need to get my hour long work out in.  I haven't had a pre-workout that I didn't love.  There is Mango Pineapple, Watermelon Ice, and Blue Raspberry and more. I mix my pre-workout in my IdealFit shaker bottle with about 8-10oz of water and drink while I change into my workout clothes.  I actually wake up excited for my pre-workout, lol!
The only thing better then the pre-workout is the BCAA's.  I am in love with the current two flavors I have Apple and Blueberry Pomegranate  and I am so excited to get the new flavor Strawberry Kiwi .  I make my BCAA's when I am done with my workout.  I use my shaker bottle and mix one scoop with about 20oz of water.  I drink this while I'm getting ready for work to help with muscle recovery.  On days that I don't get a workout in I will also drink my BCAA's in the afternoon to help curb any cravings I may be having.

I have discovered that my family has become creatures of habit.  I think in our situation we have to be.  Since having Raygen we think things through and we are forced to look way into the future.  We plan our vacations early and always know where the hospitals are.  We never plan to fly or leave the States.  The thought scares me with Raygen's heart.  We plan our financial situation around the "what ifs," and we always try to make sure the car is full of gas.  You just never know when you may need to rush to Seattle.  I have found that being a creature of habit is a way for me to deal with the stress of being a Heart Mom.  You may think I get bored, but honestly I don't.  I find peace with being boring, lol! 

XOXO

Erin and Raygen


























Monday, January 16, 2017

How we start our day....

We start our day  the same way every day.  It doesn't matter if it's a Monday or Friday the one thing that doesn't change in this house hold is our breakfast.  Raygen is completely fed through a g-tube with a home made blend that I make everyday.  Zoie starts her day with a bacon sandwich and myself, a PB&J smoothie.  

Let's start with Raygen.  Her diet is a little more strict and I would say the healthiest, well balanced diet of any 5 year old I know.  Most kids her age are enjoying their fair share of McDonald's nuggets and french fries and of course what kid doesn't love pizza?  Don't get me wrong I'd do anything to feed these things to Raygen.  The urge to order her a Happy Meal sometimes is a little overwhelming.  Just for the plain fact I've never bought her one.  To be honest I'm not a huge fan of fast food and we hardly ever eat out.  I am lucky and my family loves eating at home, but when you know you can't do something isn't it the one thing you truly want to do?

Raygen's blend recipe is made specially for Raygen.  Raygen has a dietitian that I work closely with to make sure we meet all her needs.  This isn't a blend for every g-tube fed child, but I thought I would share Raygen's to give some parents some idea's.  I know I get ideas and tips from our best friends (Christina and Gabby) for increasing calories etc. 
Looks like a lot?  Well it is.  This is a process:
We start with 12oz Organic Whole Milk
1/3 cup coconut milk
one banana
1 cup mixed fruit
4oz chicken
2 cups mixed veggies
3tbs powdered dry milk
1tbs flaxseed
3tbs Gerber dry cereal
1tbs Karo syrup
2tbs olive oil
1 slice of bread
1 carnation breakfast
pinch of salt
1 Flintstone vitamin

This makes enough to feed Raygen for one day.  All of this gets blended into a smoothie and fed throughout the day  through her g-tube.  This gives her 1,224 calories give or take and with this she gets around 500ml of water with flushes and meds.  I feed Raygen around 5 times a day that is around every 2 1/2 to 3 hours.   

Maybe now it's easier to understand why teaching kids who are g-tube fed how to eat can be so difficult.  They probably never feel "hungry" and if they do, I don't believe Raygen would understand that putting something in her mouth would make her feel better. 

Me on the other hand, my smoothie is a lot easier and a million times tastier then Raygen's :0)
After my morning work out (I usually get his done before I wake the kids.) I really enjoy my new favorite smoothie recipe.  It's the Ideal Lean PB&J smoothie.  It's so simple.


8oz Almond Milk
2TBS PBfit powder
2TBS Sugar Free Jam
Ice
Blend and Enjoy!

Do you count your Macro's?  I do.  If you do this smoothie looks like this:
27P 6C 7F 195Calories

To save me time in the morning I do a lot of prep in the evening before bed.  It does take a lot of work to make sure your family is healthy and fed.  I think some how I am starting to get the hang of it, but tomorrow could be a total different story.  Raygen's cardiologist appointment is February 2nd and I am terrified.  I know she looks good, but what does her heart look like?  What will her blood work show? 

Email me with any questions.  I am always happy to hear from you and help whenever I can.

XOXOX

Erin & Raygen





Friday, January 13, 2017

Breaking Free...


It's been a long two weeks, but I can finally say I think we are at the tail end of this cold.
We've had to come up with new toys to keep Raygen entertained so we rediscovered Zoie's old Barbie's.  Raygen was pretty impressed.  When Raygen is sick we do not take her outside or out in public.  First off we do not want to expose anyone to her in case she spreads any germs, but we also don't want to expose her to anything that could cause her cold become something bigger.
The weather has been nothing but snow or very cold and it's been a little disappointing that Raygen hasn't felt well since she hasn't experienced the snow yet.  I know 5 years old and she hasn't made a snowman???  It is a price we pay to keep her healthy.  I hope someday we can take her out in the snow I think she would truly enjoy it.  I see snowball fights in her future.
What is so impressive about this girl is even when she feels horrible she is happy.  I know what your thinking.  She does have her melt downs and we do have tears and our frustrations, but she still has those moments where she gives her little smiles and looks and I know she is going to be okay.
This girl.....I just love her.  It is so hard to wake this sleeping girl in the morning to head to work.  I could snuggle with her all day.
She is still enjoying her big girl bed!!  I can not believe she is almost 6 years old.

So I have some new goals for this blog this year and I really hope I am able to achieve them.  You won't believe how fast my days fly by.  I always say "I'm going to blog today." Then before I know it, it's 10 and I need to get to bed.  :0)

Wednesday Raygen is going to receive her new IPad that will be used specifically for communication.  My girl is going to get a voice!!!  I am so excited and yet so nervous.  It isn't going to happen overnight, but hopefully through ABA therapy and dedication from us at home Raygen will be less frustrated and we will be able to know her wants and needs. 

My goal is blog at least 3 times a week during this process and update you on how Raygen is doing learning her IPad, ABA, and learning how to eat. I also want to touch basis on things that help me personally.  As you may know I am a full time working mom of two and to keep myself sane I have fell in love with fitness, running,  and IdealFit

To get started I want to introduce you to my go to products to help me stay on track. 
IdealFit Toning Stack on sale for $79.99 a savings of  $84.97!  That's huge.  I ordered this today.  I choose Mint Chocolate Protein Powder, and the new Strawberry Kiwi BCAA.  I have been using the CLA and Night Time Probiotic for a couple weeks now and I really love them.  I feel no awful side effects.  I love that IdealFit is especially for women.   I am excited that I  found a product that keeps up with my hectic schedule and keeps me full of energy to the best I can be.  Being a special needs mom can be hard.  We don't always have the time to go to a gym, the money for a professional, but with the right supplements and support even a stay at home mom can be a fit and happy mom.  If I can do it.  So can you. #ad

I hope you stay on this roller coaster and join me.

Erin






















Sunday, January 8, 2017

The Never Ending Cold


So this is us since Thursday. This nasty cold or flu has taken over our home. We have all been coughing, snotty messes. I know a lovely picture I paint, lol. But it's our life. It takes Raygen twice as long to recover from a cold then a healthy child. While pumping her full of food, Tylenol and ibuprofen I also monitor her temperature, o2, and listen to her lungs. Something as minor as the common cold can become very serious very quickly for Raygen. Now I'm just trying to take care of everybody without reinfecting Raygen. It's been an exhausting few days. Praying tomorrow we will all feel a little closer to normal

XOXO

Erin