Sunday, April 24, 2016

Nero Update

Friday Raygen and I headed to Seattle Children's to see a Neurological Developmental Specialist.  It is only the first of many visits in our future.  This was basically an appointment to make an appointment, but worth it.  This way the specialist has a base line of where Raygen is.
In true Raygen form, we started the visit off with a huge puke all over the exam room.  This is something that happens when Raygen works herself up, so I'm used to it.  I don't think the doctor was though, lol!  When Raygen realized that nothing was going to happen to her she became her happy, laughing, wonderful self.
The first step in trying to figure out if there is something besides autism going on with our girl is a 45 minute clinic appointment with a few different doctors, where they play with Raygen and interact with her in a playroom setting and observe.  After the play they will meet and discuss what their thoughts are and then relay those thoughts to Randy and I.  I am very nervous, but excited for this appointment.  I really want to make Raygen's future as bright as I possibly can and knowing if there is a better method to teach her or understand her, I am all for it.  Regardless of any test result we love her just the way she is. 
Raygen also had her 5 year wellness check and is 38lbs :0)  I so glad my girl is finally putting on a little weight. 
I'd like to welcome AJ to our family.  Zoie's new best friend.  I am so excited to help make this beautiful girl's dreams come true.

Sunday, April 17, 2016

Trike Riding

Trying to work a little fun into physical therapy.  I don't think the trike is a big hit yet, but we will keep working on it :0)

Tuesday, April 5, 2016

Another week...

Sunday is always food prep for Raygen.  Cooking up some meat for protein and I like to freeze my banana's so they last through the week.  Plus there a great snack for Mom :0)
After leaving Walmart on Saturday.  It was crazy!!!
She loves making a mess.  Rubber bands go a flying everywhere when Raygen's around :0)
Yesterday Raygen ran into my desk at work.  Not her first black eye and probably not her last, but makes me so sad.  



Wednesday, March 30, 2016

Easter and Doctors

I took Raygen to the doctor on Monday for a check-up.  It was day 14 of medicine trying to control her cold that she just can't kick.  She has improved a ton I am happy to report and so relieved.  We are doing two weeks of a probiotic and doing mineral oil drops in her ears to help break down the wax so we can get a good look at her tubes.  We will go back to the doctor and have her 5 year wellness check, hopefully her ear tubes will be unblocked, and she will have to receive two shots :(.  The doctor recommended we hold off another two weeks before returning to preschool.
Raygen loves to play with the rubber bands at work.
I think more then anything Raygen just loves making a mess at work.
Raygen enjoyed Easter.  It wasn't a sunny day here in Washington so we pretty much stayed home and inside.  We did go visit the Grandparents early in the day, but we had a nice dinner at home and spent the day relaxing.
Even took a nap and that never happens in this house.
PS: If you live in the Lewis/Thurston County area and want to be part of our new Mended Little Hearts Chapter please send me a message.  Were looking for local members ;0)

Wednesday, March 23, 2016

Happy Birthday Raygen!!!

Happy Birthday to my amazing daughter.  We love you so very much!!!



Monday, March 21, 2016

Raygen's 5th Birthday Party: Part 1

Raygen's 5th birthday is Wednesday.  I can not believe she will be 5 already!!  I am just so in love with this amazing little girl.  For this birthday we thought we'd go all out and celebrate it at the Hands On Children's Museum in Olympia.  It was great!  Raygen loved it.  I will say there were a lot of people and a lot of parties going on, but I think everyone enjoyed themselves.  I know Raygen loved running around and watching everyone.  She really didn't check out her gifts till we got home and she only looked at a few before she was ready for bed.  You know it was a good party when your kids sleep all night long after :)
Can't wait to share all the pictures with you.

Wednesday, March 16, 2016

Getting By...

A picture is worth a thousand words.  This one tells you how Raygen is feeling today.  We took her back to the doctor on Monday and she was prescribed some more antibiotics in hope it would help clear up her congestion.  Monday night she woke up around 3am getting sick everywhere.  It was so awful.  I felt so bad for my baby.  It makes it even harder when she can't tell me what hurts so I make guesses on how to make her feel better.  We have decreased her feeds and what we do give her is in small amounts through out the day in hopes that she keeps it down.  We have stopped her diuretics till she is back on full feeds.  One of the scariest things to do with heart kiddo's are to have them dehydrated.
Even though she doesn't feel good she still has to come to work with mom.  So I think she is allowed a crazy hair day.  I hope today to increase her feed and fluid intake and get this girl on the mend.  She has her 5th birthday party on Sunday and I don't want her to miss it.



Monday, March 14, 2016

ENT and the flu....

It was a very long day. Bellevue for ENT and awful traffic the whole way home. We now know Raygen has both ear tubes, but there not working. The plan is to put mineral oil in her ears a couple times a week to help break down the wax build up and see if the tubes will fall out on their own. We will go back in six months to see if the tubes have fallen out, if not we will have them removed. In the meantime if Raygen gets any ear infections we go back to ENT sooner.
Raygen starting getting sick Saturday night and still isn't feeling well today.  She is very stuffy and is having a hard time keeping her food down.  I have been just sticking with Pedialite and she seems to be able to handle it.  I was going to try food today, but since she seems worse then yesterday I don't think I will.  I hope by tomorrow she starts to improve otherwise I will be taking her to the doctor.  Please pray for her.



Wednesday, March 9, 2016

Happy Birthday Gabby.

Raygen's Best Friend, Gabby, is turning 5 today.  I had to share her mom's post that she wrote today.  It is absolutely beautiful.

Sunday, March 6, 2016

Pray for Aiden.

If you are a reader of my blog you know we are very close to our heart friend, Aiden, and his family.  He is having a rough time and has a heart cath coming up soon.  Prayers are needed and very much appreciated for this amazing little boy and his wonderful family.