Monday, May 25, 2015

Hiding Places...

Raygen discovered that she loves to hang out and hide under her Dad's desk. 
So when she isn't in her tent or closet all we have to do is look under the desk and there she is.
We do make her socialize, I promise.  But I do allow her space.  She needs the peace and quite to herself because this makes her feel safe and happy and whatever makes this girl smile is exactly what I'm gonna do.  
I think she deserves it.

Thursday, May 21, 2015

Sleeping in a tent

Raygen has this pop up tent that she got for Christmas and she loves it.  She rolls around in it up and down the hall just laughing away. 
This is exactly what she was doing one night, but all of the sudden she stopped laughing...
First of all, being a heart mom, I jump into panic mode thinking "Why isn't she laughing?" and "I don't even hear the Ipad."  but there was no need for panic.. 
She just decided she'd take a nap in her tent :)  She played and played till she couldn't play any more.  I do think she fell asleep with the door down and with the Ipad because she didn't want to share it or be disturbed. 
Raygen also had PT this week at school.  She looks so grown up.  She loved playing with the blocks and sitting in the "Big Girl," chair. 
Raygen also walked up and down the halls checking everything out.  Even running into the little girls room to see what was in there, lol!  She is so much fun.  There isn't a day where this kid doesn't make me smile.

Monday, May 18, 2015

Fun Times..

Raygen is so funny lately.  After years of just sitting on the floor she now discovered she likes chairs. 
Raygen also is in love with sunglasses.  She wears them all the time. 
At Grandma's house all she needs is her box of lights and some straws and she's a happy camper. 
Her new best friend, my niece Bailee :) 
I love how she crosses her legs.  She looks like such a little adult.

Things have been going so great for us.  Raygen has been so healthy and happy.  Life is finally starting to feel so normal.  I know I have to call this week and make her next cardiologist appointment so I know my life isn't normal, but I think it's as close to perfect as it can be.

Tuesday, May 12, 2015

May is Stroke Month


Two of the people I love most in this world have survived a stroke.  

Raygen had her stroke sometime after her first heart surgery.  It was confirmed about a year ago by an MRI.  She suffers from weakness in the right side of her body.  Especially her right hand.  There is no way to know exactly when Raygen suffered her stroke.  

My Dad had survived his stroke almost a year ago.  Thank goodness my mother was home and recognized his symptoms.

         F – Face Drooping
         A – Arm Weakness
         S – Speech Difficulty
         T – Time to Call 911

Stroke is the No. 1 cause of disability 
and the 5th leading
 killer in the nation.  
But there's good news:
 Stroke is preventable, 
treatable and beatable- with your help.

For more information:
I am so grateful to have these two amazing, 
wonderful people in my life.
 Make sure you watch
 for the signs and call 911.

Friday, May 8, 2015

Supporting Big Sis

Zoie has had to give up having Mom and Dad at her events more then any kid should.  There are times when we have to be with Raygen.  Even though we could split our time between the girls there are certain appointments that require that both Randy and I are present for.  This week Raygen was able to come with us and support Zoie during her barrel race.  Although it looks like Raygen didn't enjoy herself, she did.  She walked all over exploring and could have spent all day playing in the rocks.  She didn't pay any attention to all the horses around or people, but she wasn't scared.  Large groups used to scare Raygen, but now she has been able to over come that fear.  It's exciting being able to take Raygen to support Zoie in something that means so much to her and that she works hard for.  Zoie is an amazing big sister and daughter.  I think Raygen has a great role model.  

Sunday, May 3, 2015

Fun Weekend

Raygen loved wearing my sunglasses this weekend. 
Papa took Raygen on a few long gator rides.
They wore each other out.
She loves slides.
Raygen especially loves playing in the rocks.
We had a great weekend.  We had Great-Grandpa's birthday party on Saturday and we met our best friend Gabby and her mom to play on Sunday.  We had beautiful weather.  I can't wait for summer.  I know we will be spending a lot of time outside.  Raygen gets very upset when it's time to come in.  I better load up on the sunscreen.



Thursday, April 30, 2015

Fun Times..

Raygen discovered pool toys are not just for the pool.
Walking backwards has become Raygen's new way to travel.

Tuesday, April 28, 2015

Monday, April 27, 2015

Playing at Grandma's...

I've been feeling a little under the weather so my wonderful Mother has been helping me with the girls.  You can tell Raygen doesn't mind :) 
Raygen enjoy's her Gator rides, but... 
she also enjoys a wagon ride.  Her favorite is the four wheeler. 
I just love all her faces.  Today she climbed up in the recliner all by herself.  Mom and I were so excited!  We were cheering her on and clapping and her reactions was.. 
this sweet face.  She had no idea why we were cheering, lol!

I think it's so crazy that she has no idea how wonderful she is.  She amazes me everyday.  It seems like only yesterday I was wondering when she would walk, if ever.  Now there is nothing that slows this girl down.  She is climbing up on chairs, up stairs, taking our hand to what she wants, and she even understands when we tell her to go give Papa a kiss goodbye.  She kisses Papa then heads to the door.  I have to get that on video.  It's priceless.  

Monday, April 20, 2015

Ear Checkup

Raygen playing with her lite-brite wall this morning waiting for her check-up.
Lining all her sticks in a row.

Doctor Polley said Raygen's ear looked great.  She said the ear drum was healing well and two more days on the ear drops and Raygen should be good to go.  The tube is out of the right ear, but she still has a tube in the left.  I really hope she is big enough not to need another set, but I guess only time will tell.
Raygen finished her day spending some time with her sister, Zoie.  It was so sweet to see Raygen want to sit on her lap and play the game with her.  Raygen hardly ever wants anything to do with her sister, no matter how nice Zoie is to her, but today she was happy to let Zoie help her play.  These moments are what I love the most.  My two girls together, happy, and healthy.

I am very blessed.