Friday, April 18, 2014

When you can't decide...




When you can't decide what to watch, watch both :)

Thursday, April 17, 2014

Raygen is starting to feel better...


Raygen is finally starting to feel better today.  The nights are still pretty rough, but colds are always worse at night.  I think a few more days of medicine and hopefully, tonight, a good nights rest she should be feeling better.  We are going to have to live in a very tight little bubble till after her cath.  I have to get her healthy and keep her that way.  Thank you for all your support and prayers.  They are working.

Tuesday, April 15, 2014

May 13th....



So I know your going to think I'm crazy when you see this smiling little girl, but this is her waiting to go to the doctor this morning.  Raygen has been fighting a bug over the last few days and I have been really struggling with the idea of canceling her cath. I decided I better take her to the doctor and get their thoughts. So this morning I took Raygen to see our favorite Dr. Polly. Dr. Polly said that Raygen had fluid in her ears and a very icky throat  so guess what, she is on another round of antibiotics and we had to post pone her cath till May 13th. The risk of Raygen becoming very sick if she is placed on the vent with a cold is very, very high. I know this is God's way of saying it isn't time. I know God will allow everything to happen when the time is right and so now I pray my girl gets healthy for May 13th.

Monday, April 14, 2014

Praying for you Hope..

One of Raygen's HLHS friends has been in the hospital for a very long time.  It must feel like an eternity for her family.  This weekend Hope's mom gave us her address on her blog so we could send Hope something special to brighten her day and her room.  


Hope Wodzisz
M43-13
Cleveland Clinic Children's Hospital
9500 Euclid Ave
Cleveland, OH 44195

If you have time this week.  Please take a moment and sent this sweet girl something to make her day a little better.  It's not easy being in the hospital during holiday's like Easter, so if we could make it a little brighter for Hope, I would sure like to try.



I have also included the link to Hope's blog so you may stay in touch with her journey.

Please say a prayer for this amazing family this week.

Saturday, April 12, 2014

Easter Past..

Raygen's first Easter she was still at Children's and just had her trach placed. 
Those were some long, hard days. 
What an amazing girl I have. 
Her second Easter we were home with no trach.  We were able to enjoy the entire day with our whole family. 
What an amazing God we have and what an amazing daughter I have.

God is so good.

Thursday, April 10, 2014

Spring Break at Seaside!


Since the weather wasn't too great Raygen and I had a few bike rides inside.
We watched Zoie play ping pong.

Zoie and I did paint a plate.  It was fun to have some one on one time with my oldest girl.
When there was a break in the weather we did go for a walk.
and played at the park.
and we couldn't leave the beach without feeding the seals.

Now we have to keep our girl healthy for the next few weeks.  Her cath is approaching way too fast.  I know it is something that we can not avoid forever but it still doesn't make any of it easier.  I'm glad we had a trip to have some family time.  I love getting away with the girls and watching Raygen come alive and enjoy herself.  This was the first trip that I saw Raygen "want" to go do things.  It was so great!

xoxoxo
Erin




Saturday, April 5, 2014

Family Time...


Even with a king size bed mom still gets the corner, lol!!

Waking up at the beach!!!
The weather isn't too great, but the view is still priceless.
Headed to the carousal...

Zoie loves it, but I'm not sure how Raygen feels about it this time??
Always nice to spend some good family time together before a major event.  Major event, being Raygen's up coming heart cath on the 22nd.  I'm not going to think about it now.  It scares me too much and I just want to enjoy ourselves and our two beautiful daughters.
xoxox

Erin

Wednesday, April 2, 2014

Raygen loves her bike!


I found this cute little push trike at Toys R Us and couldn't help myself.  
Raygen had to have it for her birthday.


She loves its as much as I thought she would.  I can not wait till our weather is nicer so we can spend more time outside.  I know she will want to take a lot of walks this summer in her new bike.  

xoxo

Erin

Monday, March 31, 2014

Just another day at the office...


Raygen loves to stack her movies and
make sure they are just right.
She also loves to stack and herd the rolls of tp around the office...
but for that smile I don't mind.

xoxox

Erin

Saturday, March 29, 2014

Who needs toys...


She has to have them in a certain order....it really bothers her if the bottles are not lined up just right.
Who needs toys once you have learned how to open the fridge?
Nothing makes me smile and laugh more then what this wonderful girl comes up with.

xoxo

Erin