Thursday, February 26, 2015

Watching Sister Ride...



Raygen loved going outside on Sunday in Zoie's wagon.


Not too impressed on Tucker, though.

I just think she looks so cute :)

Zoie on her pony, Tucker.

xoxo

Erin

Friday, February 20, 2015

Stealing my sunglasses...


I gave Raygen my sunglasses because she was getting restless in the car and...
she LOVES them, lol!  She doesn't want to give them back to me.
I guess she taught me a good lesson.  Don't give her anything you hope to get back, lol!  She looks so dang cute in them I can't help but let her keep them.  For awhile at least :)
 
XOXO
 
Erin

Tuesday, February 17, 2015

She's a toddler


 Raygen starts her morning off with crashing her tent...

~Then~ 

She makes a mess in the kitchen with the paper cups that she discovered.

~And she finishes the day with~


Taking everything out of my mom's purse and her diaper bag.

Life of toddlers :)

and 

I Love Every Minute!!


Friday, February 13, 2015

Thank you....


WE RAISED $1730.00 FOR MENDED LITTLE HEARTS!!!!

THIS WILL GO TOWARD CREATING MORE BRAVERY BAGS FOR OUR CHD WARRIORS AND THEIR FAMILIES!

Support the Mended Little Hearts Bravery Bags!

A Bravery Bag is full of items to support families with a child in the hospital after heart surgery or other heart procedures. When a child needs a heart surgery or procedure, the whole family has to be very brave—the child himself/herself, the parents or caregivers, and any siblings. The Bravery Bag contains items that help the family have courage and strength through this time of crisis to know they are not alone.
With each $20 donation, we can send a bag full of items families need to the hospital, including comfort items, toiletry items, a Courageous Heart Token and even an adorable stuffed lion with a patchwork heart.


If you would like more information on Mended Little Hearts and learn more ways to help:

Thank to everyone who wore RED FOR RAYGEN today.

Thursday, February 12, 2015

Wear RED Tomorrow for CHD...


I am a Heart Mother... poem


I am a Heart Mother

One day my world came crashing down,
I'll never be the same...
They told me that my child was sick..
I thought, am I to blame? I don't think I can handle this... I'm really not that strong..
It seemed my heart was breaking.. As, I'd loved him for so long. I will not give up on this child..
despite your best "advice".. I will give my child a chance.. No matter what the price..
And I will learn all that I need.. to help my child to thrive... I'll even use that feeding tube.. My child will survive!
And he'll needs lots of therapy?
And he just can't gain weight?
Alright God I can do this.. I will not curse our fate. The feeding pump beeps,( at 3:00 a.m.) It serves as my reminder.. How many parents would welcome that sound?
Tomorrow Lord, I will be kinder. Another angel earns their wings.. and I run to my sleeping child's bed.. I watch him then, for quite awhile.. (I bend down and kiss his head) Then I cry for the parent's whose lives have been broken.. And I look to You wondering why?
Oh Lord, I just can't know your ways.. No matter how I try. And yet, I trust You hold his life.. (and guide us through each day) My mind says savor each moment he's here...
But my heart whispers,"Please let him stay". From... pacing the surgical waiting room... to sitting by his hospital bed... From... wishing for a good nights sleep.. to learning every med..
From... wondering will he be alright? to watching him reach out his hands..
with every smile, my heart just melts.. (despite life's harsh demands) For all who see that faded line.. I look to them and smile.. You see my child is loved so much.. I would face any trial... That same scar I trace with my finger.. (It's the door to his beautiful heart)
You must have known how much I'd love him.. (Just as You loved him right from the start) A heart mom is always a heart mom.. (wise beyond all of her years)
And for those who have angels in heaven.. Our hearts share in all of your tears.. On Mother's Day I will remember.. You chose me for him(and no other) And I will embrace that beautiful day..
When I became a "heart mother".
This was written by Stephine @ www.heartsofhopemi.org Stephanie Husted Mommy to Braeden HLHS post Fontan Carepage name: babyhusted

This poem says exactly how you feel being a heart mom.  Please wear red tomorrow for Raygen and all her fellow CHD warriors.

Tuesday, February 10, 2015

The Winner's Are......

At Brenda's.......

At the Buck Stop....

AND THE WINNERS ARE:........

The Basket at Brenda's Country Market was Garrett!!!!!

The Basket at the Silver Creek Buck Stop was: Grayden and Holter!!!

Words can not express how grateful I am to each and every person you donated and helped with this project.  I wish I could name you all and personally thank you.  All the money that was donated will be mailed directly to Mended Little Hearts in Tacoma.  The money will touch so many lives.  I will have a total of the money earned for you tomorrow!!!  

Thank you, Thank you, Thank you, for making this fundraiser such a huge success.  Right now I am estimating we raised around $1500.00


Raygen sends you all lots of love :) and remember to wear RED ON FRIDAY!  Lets finish CHD week strong!!!











Monday, February 9, 2015

Wear Red on Friday...Raygen's Story continues...

Raygen with paralyzed vocal cords.  They kept her up to avoid aspirating.
Raygen on the vent.  
Raygen on C-Pap.  Not very comfortable for babies.  When Raygen was awake she would cry.
Raygen shortly after her tracheotomy.  She was having some pretty good dreams.  She had to lay still for a whole week for her stoma to heal so she pretty much was medicated the whole time.

PLEASE WEAR RED THIS FRIDAY FOR RAYGEN AND ALL CHD CHILDREN!!!

Raygen has sure had her share of ups and down during this whole CHD journey, but each time she conquers.  She survives.  So even at your darkest moment she can give you strength.  I know she does for me.  Each smile, kiss, and cuddle I get from her I am thankful for.  Every time I have to wake up in the middle of the night or even those nights I get no sleep at all, I am thankful for.

Did you know that there are between 2 to 4 million Americans living with CHD today?


Tomorrow we will be drawing to see who is the lucky winner of our Valentine's Baskets :)

I'm so excited.....Good Luck.  Thank you again so much (Aunt Carol, Jim, Joelle, just to name a few) for buying tickets.  100% of the money will be donated to Mended Little Hearts.  It will make such a huge difference in a child's and parent's stay at the hospital during the most difficult times.

Saturday, February 7, 2015

Her first days..

We were so scared Raygen would get sick that I wore a mask before her first surgery.

She was such a sweet baby.  So peaceful.  I never knew what laid in store for her.

This was the morning of her surgery.  I was a mess.  She is such an amazing girl.
How common are congenital heart defects?
~CHDs are the most common birth defects. CHDs occur in almost 1% of births....
~An approximate 100-200 deaths are due to unrecognized heart disease in newborns each year. These numbers exclude those dying before diagnosis.
~Nearly 40,000 infants in the U.S. are born each year with CHDs.
~CHDs are as common as autism and about twenty-five times more common than cystic fibrosis.
~Approximately two to three million individuals are thought to be living in the United States with CHDs. Because there is no U.S. system to track CHDs beyond early childhood, more precise estimates are not available.
~Thanks to improvements in survival, the number of adults living with CHDs is increasing. It is now believed that the number of adults living with CHDs is at least equal to, if not greater than, the number of children living with CHDs.
More facts can be found at:
http://www.mendedlittlehearts.org