Friday, March 27, 2015

Hands On Museum

We were so excited to be invited to Gabby's Birthday party last Sunday at the Hands-On-Museum.  After Hours.  So all her special needs friends were able to play and enjoy themselves.
Raygen loved the lego wall.  Just in her fashion she had to dump them all out.  She also light the light table above.
Zoie climbed high into the Eagle's nest.
Raygen's favorite thing was the steam table.  She could have stood there all day long.

She also enjoyed picking apples.
Then we would dump them on the floor to start all over again.

It was so exciting to take Raygen to the Museum.  I never thought in a million years I would take her there.  Not because she wouldn't like it, but because of all the people and germs.  It will still be awhile before we go there during business hours, but it was an amazing experience to take her there after hours.

She loved it and I loved watching her be a normal 4 year old.



Wednesday, March 25, 2015

4 Years Old

These beautiful pictures were taken by christina myhre photography.  She did such an amazing job.  I can not believe I have an 11 and 4 year old.  How time is just going so fast.  I love all their facial expressions.  You can always tell how both my children are feeling about things because it's clear as day on their face.  

Monday, March 23, 2015

Happy 4th Birthday!

My sweet, darling girl.  You entered my life at 12:01 a.m. 4 years ago today and I have been amazed by your strength, courage, and amazing personality every day since.  We have counted your milestones in surgeries and procedures up till now, but this year and moving forward we will be counting different milestones :).  We have no more major surgeries looming in our future, instead we have vacations, preschool, playing at the park, in grandma's pool, and picking lots of flowers.  I can not imagine my life without you.  You and I are best friends, hardly ever parted.  I love how you run up to me and give me kisses and hug my neck when your ready for bed.  I love how you love to play with tape, you adore Elmo, you love your ABC's and you can work an IPad better then me :)  You have become fascinated with light switches (thank you Papa Brad for that,) you wave bye-bye, you give high-fives, and you give your cheek to everyone when they ask for a kiss, lol!  Raygen I couldn't be more thankful to be your mom.  There is something so special about you, something deep down in your soul, that just brings this amazing light and peace with you.  You truly are a miracle in so many ways.  I wish I could put into words how much I love you, how much your family loves you.  Being your mom has been one of the greatest gift of my life.  I hope the next four years for you sweet girl are filled with fun, adventure and lots of laughs and many, many of those wonderful dimple filled smiles.

Sunday, March 22, 2015

Friday, March 20, 2015

Birthday Countdown...

12.28.2010 My Beautiful Raygen

1.11.2011 So close to her arrival

Raygen's birthday is Monday.  3 days away!  I always get so emotional this time of the year.  More so than any other time.  I prayed so long and hard for another baby and when I was blessed with that positive pregnancy test and didn't loose the baby very early on like I did before I was overjoyed.  Looking back I knew my pregnancy was different.  Different from my pregnancy with Zoie, but never in a million years did I ever think my baby would have a heart defect.  Not just a heart defect, but H.L.H.S or half a heart.
Raygen is an inspiration to me each and every day.  I share her story to help inspire others.  When life hands you lemons you gotta make lemonade, right?  I would not be the woman, mother, wife, daughter, or friend that I am today without Raygen.  She makes me be better, try harder, be nicer, and appreciate EVERYTHING!  She is my blessing and my miracle.  There is a reason God blessed me with her and I don't go a day without thanking him for her.

I love you Raygen!!



Thursday, March 19, 2015


So Raygen is coughing.  More then the normal cough.  A hard, rough, nasty cough.  She seems to be acting fine otherwise.  No fevers.  She has been getting sick, but due to coughing so I'm not sure.  She does have a little runny nose so it's probably just a cold.  I can't wait for her to battle trough it.  She isn't sleeping well and who likes to get sick multiple times a day?  No preschool for us tomorrow :(  If I don't keep my coughing child home I can't expect others to do the same.

Were going to celebrate mine and Raygen's birthday on Saturday!!  I'm so excited.  I can't believe she is four already....  We also get to go to our wonderful friend's Gabby Birthday party at the Hands On Children Museum on Sunday.  If Raygen is feeling better of course.

Sunday, March 15, 2015

First Day at Preschool!!

Raygen loved looking around and checking out Preschool.
She just chatted up a storm to herself while she was exploring.  I wish I knew what she was thinking.
She watched the other kids which was nice.  She didn't try to play with them, but the fact that she played in the same room with them was a big step for her.
Raygen has her own box and cuby.   So exciting!!  These normal first just make me want to jump up and down.  
She wasn't afraid to grab thing she wanted to check out.

Like every preschooler her favorite part of the day was recess.  She loved playing in the rocks and going down the slide.  It was nice to see the other children being so nice to her.  I was a little nervous about Raygen getting sick, but I think sometimes you just have to risk it.  We left about half an hour before school was out because Raygen had met her limit.  She started to get upset and cry and was leading me to the door to leave.  I thought she did amazing for her first day.  I was so proud of her.  I think we will continue to go on Fridays and see how she does especially since I stay with her the whole time. :)

Thursday, March 12, 2015

She's almost 4!!!

Raygen found some kisses at our house and it was great therapy to get her to unwrap them and then in Raygen fashion line them up in a row.
She loved playing outside in the rocks.  She defiantly isn't our girlie girl.  She doesn't care at all about getting dirty.

I can't believe on the 23rd she will be 4 :)  How time is just flying by.  This will be the first year ever that we don't have a major heart surgery looming ahead.  It's gonna be a great year!!

Friday, March 6, 2015


The girls playing with "Raygen's Lite Brite Wall," while waiting for their doctor appointments this morning.  
Raygen is still fighting a nasty cold and Zoie has an ear infection.  I'm hoping they will feel better soon.  The weather here has been amazing and I feel so bad that they are cooped up in the house all day.  

Tuesday, March 3, 2015

She can pick up???

Now I know Raygen could pick up after herself if she wanted to.....or maybe if I made her, lol!!

No chance of either of those two things happening.