Wednesday, February 10, 2016

I'm replaced...'


Raygen took over my job yesterday.
She did a pretty good job and looked so cute on the job.
I think Papa has found his new Secretary.
Raygen's first art project from preschool made it on the class wall!!!

xoxo

Erin

DON'T FORGET TO GO BUY A RAFFLE TICKET AT THE SILVER CREEK BUCK STOP AND BRENDA'S COUNTRY MARKET!!!



Monday, February 8, 2016

Roar N' Run week has started...


How many babies are born each year with a complex/potentially life-threatening CHD? Approximately 25% of babies born with CHD each year require invasive or other potentially life-saving diagnosis or treatment.

Raygen is only 1% of that 25% that required invasive life-saving surgery. Raygen had her first operation at 6 days old and her second at 7 months. So her first birthday was a very big deal for us. Here is a flash back picture of that wonderful day. I can not believe this year our girl will be 5.

Saturday, February 6, 2016

It's Awareness Month



I have to admit before Raygen was born I had no idea what CHD meant or that HLHS existed; but that all changed the moment I was told that my daughter had something wrong with her heart. I can't even begin to explain what emotions swept through like a storm. The one thing I am sure of is that I cried a lot and that I was going to do all that was in my power to make sure that my daughter lived. That meant interviewing doctors including Raygen's surgeon, a new obgyn, and finding a support group. I never looked online while I was pregnant. I found support through Mended Little Hearts of Puget Sound. Talking with real moms and seeing children will all CHD's not only surviving, but thriving. We are truly lucky and blessed that our daughter is doing so well. We witnessed many families leave Seattle Children's Hospital with no baby and our heart ached for every family. That is why it is important to me to raise awareness and make sure that people continue to research for CHD. Every child deserves a chance and only awareness makes that chance possible by raising the needed funds for more research and better treatments.

Thursday, February 4, 2016

2nd Raffle Basket Delivered...


The second raffle basket was delivered to 
The Silver Creek Buck Stop
Stop by and buy your ticket for $1.00 or donate any new color crayons, coloring books, or small toys.
If your not local and still want to purchase a ticket email me at: erinmarielyons@gmail.com

Tuesday, February 2, 2016

Raffle Baskets are HERE!!!!


Ready to support Mended Little Hearts?
And win somthing great for you in the process.
Basket includes:
-A Fire Pit
-Everything needed for a perfect Smore'
Popcorn maker and all the fixin'
-Apple Cider and two wine glasses
-Fire starter
-Wal-Mart Gift Card
and a Montana West Purse
Our first raffle prize was delivered to Brenda's Country Market today in Onalaska, WA. 
If you live in the area please stop by.
You can enter in two ways:
1. $1.00 per ticket
2. Donate any new color crayons or coloring books or small toys.
100% of all the proceeds go directly to Mended Little Hearts of Puget Sound.
If your not in the area and still want to enter just shoot me an email at: erinmarielyons@gmail.com

Please remember to vote for Raygen and the Rock your Scar contest.

I want to Thank everyone who made the raffle possible:
Lyons' Family
Bucks Logging Inc.
The Silver Creek Buck Stop
Bulldog Contruction Inc
Brenda's Country Market

xoxox

Erin

Monday, February 1, 2016

Rock your Scar Photo Contest...




Please go to: 2016 Rock your Scar and vote for Raygen.  I also want to thank one of my best friends and wonderful photographer christinamyhrephotography for the beatiful pictures.

Remember February is HEART MONTH!!!!

Thursday, January 28, 2016

GI Update

On our way to GI.
She is a good little traveler.  
Raygen's new favorite place to hang out at the office.
Looks pretty comfy to me.

Raygen had a wonderful GI check-up.  We are truly blessed with how well Raygen is doing.  She truly is a miracle.  
As of this this week Raygen weighs 35lb 1.6oz and she is 3'3.57" tall.  She is in the 23% percent for weight and 9% for height.  Her growth continues to move up in the right direction.  
Raygen had her g-tube replaced and they want me to start adding different meats into Raygen's blend instead of just chicken.  So I'll start mixing up her diet and then we will check back in with them again in 3 months.
I just love simple and quick appointments.

xoxo

Erin



Thursday, January 21, 2016

Roar With Raygen

There is still time to join our team for the annual virtual walk/run for Mended Little Hearts.  




Raffle baskets will be making their appearance soon at the Silver Creek Buck Stop and Brenda's Country Market.  

February will be a busy heart month!!

Monday, January 18, 2016

There is still Time...



When you purchase make-up this week through:

This is what you're supporting, families going through their son or daughter facing open heart surgery. Raygen had to have her chest left open for 7 days after her first surgery due to swelling. I could watch her heart beat through the yellow tape. During this time she was very sedated and all I could do was hold her hand and watch her sleep and pray with every ounce of my being that she'd make it. By the grace of God she did.
When you purchase make-up this week you're supporting Mended Little Hearts that provides bravery bags and support for families with children battling CHD's. This is your chance to buy yourself, wife, or friend something special and donate to a good cause.


Friday, January 15, 2016

CHD Awareness


CHD Awareness month is approaching fast so why not get a early start.  I purchased my Tyra make-up yesterday and donated to Mended Little Hearts at the same time.  No one said a heart mom can't be beautiful. 


You can do the same or buy a gift for a loved one.  Just click on the link above and start shopping.  I'll post a picture when I get my 6 minute Ty Over.

XOXO

Erin