So I think we have a new plan. The dates have been scheduled and the people have been called so hopefully this time it will stick. The new plan is to check into Children's on November 17th and Raygen will be taken to the operating room on the 18th to have her trach removed and placed on the ventilator. Raygen is then scheduled to have her Glenn on November 23rd with 3 to 4 days after surgery taken back to the operating room to be taken off the ventilator. The plan now is to take her off the ventilator and see how she does before they re-trach her. They want to do all of this in the operating room because it is a controlled sterile environment. I just pray with my whole heart that she can breathe good without the trach. It gives me a small glimmer of hope that maybe just maybe we can home without the trach. We go to see the trach doctor next Thursday and we may discuss trying to take the trach out prior to surgery and see how she does or he may say we need to just do it after, we will leave that decision up to him. Raygen will also see her cardiologist next week as well for a follow up echo and ekg. She may also get her 6month vaccines next week too, I hate shots. We were putting them off till after surgery but now it looks like we have some time to do them before. I am glad we get another month at home with our girls. We will be home for Halloween and Zoie's 8th birthday. Raygen is doing so well right now. I just hope she continues to just bigger and stronger and doesn't get any colds. We are meeting with Dr Rubio when we meet with the trach doctor next Thursday to go over the plan again and make sure Randy and I fully understand what is going happen, since the plan is his idea. I'm nervous that Raygen's surgery is a day before a major holiday but I just have to trust that some doctors will stick around the hospital.
