Midnight tonight this
amazing girl will be 6 years old!!! I am truly blessed. I know I say that all
the time, but I have watched my daughter go through so much in her six years
that I fully understand how lucky I am that she is here with me, laughing,
smiling, and dancing. Everyone always asks what’s next? More surgeries? or
people believe she is "Fixed." One thing is for sure she will never
be "fixed." She will always live with half of her heart or someone
else's whole heart. I know how hard the thought of organ donation is, but I am
one. I believe I cannot ask of others of which I would not do myself. I pray
that Raygen can live the fullest of life with her special job, but there is
always that thought in my mind that someday we may be looking at transplant.
Remember we are asking a two-chamber heart to do the job of what is meant to be
a four-chamber heart. Her half a heart does double duty 24/7. I am always so
emotional on her birthday because I remember how it felt to have her taking
away from me and rushed to Children's hospital directly after her birth. That
wave of emotion is unlike any I have ever felt or wish to feel again. The one
thing, if you want to do anything for Raygen on her birthday, is to become an
organ donor. I know it is the greatest gift a person can offer to someone else and
the hardest. Thank you to everyone who loves my daughter and prays for her. I
can't wait to see what she does in her next 6 years. I have a feeling it will
be amazing, just like her.
XOXO
Erin
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