Praying 4 RAYGEN

Friday, March 31, 2017

Update coming soon. We've been busy with doctor appointments and I'll hopefully have time this weekend to fill everyone in on what we've been up to and learning lately about this special little miracle girl!

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Raygen is our 6 year-old daughter who at 19 weeks gestation was diagnosed with Hypoplastic Left Heart Syndrome. She was born on March 23rd and immediately transferred to Seattle Children's. When Raygen was 6 days old she undergone her first of 3 major open-heart surgeries, the Norwood. During the Norwood surgery Raygen's vocal cords were paralyzed and she underwent a tracheotomy at 2 months and was able to have her trake removed on November 18th. Raygen had her 2nd heart surgery the Glenn December 15th. Raygen will have her third open heart surgery the fontan on August 21st, 2014. She is such a miracle. She is so amazing. We pray that she continues to grow and get stronger. To read her whole journey please click on "Raygen's Story."

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Friday, March 31, 2017

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