Highs and Lows.....

Raygen had a really long week.

Tuesday was OT. Wednesday Raygen had her cast removed at Seattle Children's and it was a really traumatizing experience. After her appointment she was an emotional mess for the rest of the week. Even though the removal of the cast was pain free it was the holding down by myself and Grandma, the loud saw, and the x-ray after. Raygen has a fear of loud noises and hates x-ray's.

Thursday we headed to Tacoma for the cardiologists.   I should have known not to schedule two stressful doctor appointments back to back, but I guess I never fully realized till after the fact how much the cast removal would effect Raygen emotionally. The cardio appointment started off rough and only got worse. So much so that we just threw in the towel and rescheduled for the end of September to try again. It took 3 of us to hold her still to try to get a good pulse ox reading and the ekg was a disaster to say the least. 

I'm always an emotional mess around the time of Raygen's cardiologist appointments. You just never know the news you could receive. 

Looking back on my time hop I realized that 3 years ago this was also a crazy week for Raygen. She was recovering from her 3rd open heart surgery, the Fontan. 

Yes it was a stressful week, but we survived and hopefully at the end of September we will get good news from her cardiologist and have a good ekg and echo. 

Raygen did get spoiled this week through the tears she went to Toys R Us and the book store. 

She's a great kid. 

"Strength grows in the moments when you think you can't go on, but you keep going anyway."

XOXO

Erin&Raygen