Today we had Raygen's pre-op appointment for her ear tubes and since we were at Children's we got to visit with Aiden Ray Lescher - HLHS and his mom Elsa. It's always so nice to get together and caught up. We understand the ups and downs of having a child with HLHS and it has truly bonded us. I feel like Elsa is a long lost sister. I am truly blessed to have met her and her amazing family.
We will find out on Thursday what time Raygen's ear tube surgery will be on Monday. It is the first step in our plan to make sure she stays healthy for her Fontan in August. We have started to live in our bubble again.
Please pray for Aiden. He was so close to going home this week and then today it was discussed placing another chest tube tomorrow if he still has fluid in his chest. He is such an amazing little man and he is going on 40 days in the hospital. So many ups and downs. It truly is a roller coaster.