Tuesday, December 27, 2011

Home...Maybe....

So the doctors finally rounded today and the word "home" was talked about. They were going to take a look at her echo and ekg to make sure everything looked okay. Her x-ray this morning was good so that was reassuring. We will go home on oxygen but when I talked to our Cardio doc at home they didn't seem to concerned with it. They said that sometimes Glenn kids need the oxygen support for a couple months to give their body time to adjust to the new flow. I am a little nervous going home on oxygen but it is way better then a trake. I do truly believe that being home surrounded by her things and in her comfort zone Raygen will heal quicker then being here. We have already scheduled a follow-up appointment with Dr. Park on January 5th and I will feel better after he lays eyes on her and gives us his thoughts. Overall Raygen is doing good. She looks good. She is playing with her toys, watching her tv and just being more awake and aware. Were getting smiles and are starting to hear some of her baby noises again. I just pray she continues down this path of healing. We still have a lot to do. We are going home with some new meds, oxygen, and we have to work on increasing her feeds, but Randy and I are perfectly fine with dealing with all this. Thank you to everyone for all your love, support, and prayers. It looks like we may be home to ring in the new year which will be wonderful! Hopefully a year filled with fun, bonding, love, hugs, kisses, and a break from surgeries and Children's hospital. Knock on wood. I will keep you posted on "home."