|Raygen in her Carbon Dioxide Tent. |
Carbon dioxide prevents pulmonary overcirculation in hypoplastic left heart syndrome. more info here.
Shortly after Raygen's birth she had a hard time controlling her oxygen saturation's. So they placed Raygen in a Carbon Dioxide Tent prior to her Norwood. This helped Raygen regulate her body and kept her stable till surgery. She was in this tent for around 4 days. While she was in the tent, holding her was limited because she had to be removed from her tent. This was a hard time for us. Scared about her surgery and unable to hold her. Looking back I am so grateful for Seattle Children's and their quick responses to issues. HLHS is scary, but look at Raygen, you can survive.
|Raygen let me put shoes on her for awhile today. I'm hoping she will like to wear them so she can walk outside soon.|
|She made Zoie take them off in the car, but a little bit is better then nothing.|